Families and participants
These are some of the families who have participated in Dr. Goodenowe's community programs and charitable foundation. Their stories are shared here with their knowledge and cooperation. This page will grow as more families choose to share their experiences.
All testimonials must be confirmed directly with the families for accuracy, consent, and current status before publication. The following are based on publicly available information.
Ryan Moyst — autism parent
Ryan Moyst has spoken publicly about the impact of the autism program on his daughter's quality of life.
Thatcher — RCDP, age 7
Thatcher has non-classic RCDP. After starting plasmalogen restoration through the Peroxisomal Disease Children's Foundation, his family reported improvements in mobility, heart function, and overall quality of life.
Nova — RCDP
Diagnosed at 18 months, Nova showed developmental progress after starting plasmalogen therapy through the foundation.
If you or your family have participated in any of Dr. Goodenowe's programs and would like to share your experience, please reach out.